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How To Help My Wife With IVIG Headaches?
Eric
asked a question 💭
My wife has chronic ITP and she has to get IVIG every few months. She gets terrible headaches and nausea about 24 hours after the treatment and I’m looking for some insight to how I can best help her. Is there anything to do besides just giving her regular aspirin and letting her rest that can be done to help with the headaches?
I get the excruciating headaches as well from the IVIg treatments. They’re horrible. My last hospitalization neurology came to see me and gave me a steroid and something else concoction that actually… read more
What Foods To Avoid For Smoldering Myeloma
irene
asked a question 💭
what foods to avoid for smoldering myeloma
With ITP, you should avoid:
Foods with added sugars
Foods with trans fats (like deep-fried and fast foods)
Foods/drinks that affect blood clotting like
Garlic
Ginger
Ginseng
Turmeric
Grapeseed oil
A… read more
Hi, Is It Helpful To Get A Bone Marrow Biopsy? If You Had One, Did It Help In Treatment? How Painful Was It? Thanks.
Mary23
asked a question 💭
A bone marrow biopsy is typically only necessary in ITP to rule out other conditions or if you're not responding to standard treatments. The procedure involves local anesthesia and feels like strong… read more
More Things I Can Eat To Higher My Platelets And Fruits I Can Eat.
Barbara6
asked a question 💭
What can I eat and drink to increase my platelets.
Papaya extract is excellent at boosting platelet counts and has done so for me twice. A little pricey but absolutely worth it.
Continue With Methotrexate And Biologics
Lizzy
asked a question 💭
I have been using the above meds and have been rushed to hospital twice within 8 months with sepsis and double pneumonia. I genuinely think if I had left it a couple of days I wouldn’t be here! I came of the. Biologics because I was going to try a different one. Then stopped the methotrexate because I was on antibiotics and steroids. I have been off both for well over a month. I am now debating not going back on both the biologics and methotrexate, as I am now very scared I will not be so… read more
Methotrexate and Biologics have been a lifesaver for me. Please talk to your rheumatologist before making a decision
I Have Pain Daily. Do You?
Janice4
asked a question 💭
I have pain everyday from rhumtoid and fibromyalgia.
I Have Had Lupus For A Very Long Time. How Would I Know If I Have ITP?
Giselle
asked a question 💭
For a long time, there was a list of many symptoms and if someone had a certain number of them, they were assumed to have Lupus. Now, I believe there is more advanced testing. Is there a self-test or a list of symptoms we can check off to determine if we have ITP? I have Celiac Disease, IBS, in the past, I have had MRSA, and colitis (very severe, with terrible bleeding and I was hospitalized) and another bowel-based illness that can be fatal that landed me in the hospital
I strictly follow a… read more
ITP can't be self-diagnosed - it requires blood tests to confirm. Key symptoms to watch for include
- Easy or excessive bruising
- Small red/purple spots on skin (petechiae)
- Prolonged bleeding from… read more
Can ITP Be Acute If It Last For Longer Then 6 Months
Jody
asked a question 💭
No, ITP that lasts longer than 6 months is classified as chronic ITP, not acute. Acute ITP typically resolves within 6 months, particularly in children. When symptoms persist beyond 6 months, it's… read more
I Was Diagnosed With ITP In 2014 But Haven't Had Any Symptoms Since. Do I Still Have ITP?
Marta
asked a question 💭
I can tell you that even with no symptoms, you should still consider yourself as having ITP and continue regular platelet monitoring with your doctor. ITP can be unpredictable - symptoms may return… read more
Would Taking Vitamin K 100 Mcg Once A Day Help Raise Platelets?
Marjorie
asked a question 💭
taking Vitamin K supplements (100 mcg daily) has not been proven to increase platelet counts in ITP patients. ITP is an autoimmune condition where the immune system attacks platelets - this process… read more
