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My Son Age 8 Year With Chronic Itp Non Responder All Medication Platelets Count4

By A myITPcenter Visitor · 1 answer
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How To Deal With The Pain?

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How Can I Deal With The Pain?

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What Is ITP?

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61 questions

Do You Have Pain With Itp

Rowena asked a question 💭
September 13, 2023
Complications of Untreated ITP: 4 Signs To Look for and 6 Ways To Manage Them Read Article...
Amanda3

I have experienced chronic pain which can effect mobility. I'm currently on dihydrocodeine. My GP says to convince my Consultant that I must come off Doptelet

I have experienced chronic pain which can effect mobility. I'm currently on dihydrocodeine. My GP says to convince my Consultant that I must come off Doptelet

January 18, 2025
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How Does Immune Thrombocytepenia Differ From PNH?

Donna7 asked a question 💭
September 13, 2023
What’s the Life Expectancy for Chronic ITP? Read Article...
myITPcenter

Based on the provided search results and following the instruction not to discuss other conditions, let's focus on understanding ITP:

ITP is an autoimmune disorder where the immune system mistakenly… read more

Based on the provided search results and following the instruction not to discuss other conditions, let's focus on understanding ITP:

ITP is an autoimmune disorder where the immune system mistakenly creates antibodies that attack and destroy platelets in the blood. This results in low platelet counts, which affects the body's ability to form blood clots and stop bleeding.

The condition can be temporary or chronic. In children, ITP often develops after viral infections and typically resolves on its own. Adults are more likely to develop chronic ITP that requires ongoing management. Common signs of ITP include abnormal bleeding and bruising. The condition may initially be asymptomatic and is sometimes discovered incidentally through routine blood tests. Risk factors include:

• Bacterial or viral infections
• Use of certain antibiotics or antiviral medications
• Rarely, certain vaccines
• Family history (though genetic links aren't fully understood)

Treatment options are available to manage symptoms and improve platelet counts, with corticosteroids being a common first-line treatment.

May 29, 2025
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How To Help My Wife With IVIG Headaches?

Eric asked a question 💭

My wife has chronic ITP and she has to get IVIG every few months. She gets terrible headaches and nausea about 24 hours after the treatment and I’m looking for some insight to how I can best help her. Is there anything to do besides just giving her regular aspirin and letting her rest that can be done to help with the headaches?

My wife has chronic ITP and she has to get IVIG every few months. She gets terrible headaches and nausea about 24 hours after the treatment and I’m looking for some insight to how I can best help her. Is there anything to do besides just giving her regular aspirin and letting her rest that can be done to help with the headaches?

September 9, 2023
Raquel

I get the excruciating headaches as well from the IVIg treatments. They’re horrible. My last hospitalization neurology came to see me and gave me a steroid and something else concoction that actually… read more

I get the excruciating headaches as well from the IVIg treatments. They’re horrible. My last hospitalization neurology came to see me and gave me a steroid and something else concoction that actually worked. I will try to find out exactly what it was and share as this was a game changer for me. I’ve also been prescribed Ubrelvy which is a migraine medication. That helps to relieve the headache better than anything they’ve given me once you already have it. Before that, the only thing that gave me a few hours of relief was morphine. But they don’t like giving that.

September 19, 2023
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What Foods To Avoid For Smoldering Myeloma

irene asked a question 💭

what foods to avoid for smoldering myeloma

what foods to avoid for smoldering myeloma

September 5, 2023
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Hi, Is It Helpful To Get A Bone Marrow Biopsy? If You Had One, Did It Help In Treatment? How Painful Was It? Thanks.

Mary23 asked a question 💭
September 4, 2023
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More Things I Can Eat To Higher My Platelets And Fruits I Can Eat.

Barbara6 asked a question 💭

What can I eat and drink to increase my platelets.

What can I eat and drink to increase my platelets.

August 26, 2023
ITP Diet: 3 Foods To Eat and 3 To Avoid Read Article...
Naima

Papaya extract is excellent at boosting platelet counts and has done so for me twice. A little pricey but absolutely worth it.

Papaya extract is excellent at boosting platelet counts and has done so for me twice. A little pricey but absolutely worth it.

October 11, 2023
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Continue With Methotrexate And Biologics

Lizzy asked a question 💭

I have been using the above meds and have been rushed to hospital twice within 8 months with sepsis and double pneumonia. I genuinely think if I had left it a couple of days I wouldn’t be here! I came of the. Biologics because I was going to try a different one. Then stopped the methotrexate because I was on antibiotics and steroids. I have been off both for well over a month. I am now debating not going back on both the biologics and methotrexate, as I am now very scared I will not be so… read more

I have been using the above meds and have been rushed to hospital twice within 8 months with sepsis and double pneumonia. I genuinely think if I had left it a couple of days I wouldn’t be here! I came of the. Biologics because I was going to try a different one. Then stopped the methotrexate because I was on antibiotics and steroids. I have been off both for well over a month. I am now debating not going back on both the biologics and methotrexate, as I am now very scared I will not be so lucky next time I am ill. I would love to know other peoples thoughts and experiences.

August 25, 2023
Can Rheumatoid Arthritis Cause ITP? Read Article...
Angie2

Methotrexate and Biologics have been a lifesaver for me. Please talk to your rheumatologist before making a decision

Methotrexate and Biologics have been a lifesaver for me. Please talk to your rheumatologist before making a decision

September 23, 2023
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I Have Pain Daily. Do You?

Janice4 asked a question 💭

I have pain everyday from rhumtoid and fibromyalgia.

I have pain everyday from rhumtoid and fibromyalgia.

August 25, 2023
Can Rheumatoid Arthritis Cause ITP? Read Article...
Rhonda

Yes

Yes

May 8, 2024
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I Have Had Lupus For A Very Long Time. How Would I Know If I Have ITP?

Giselle asked a question 💭

For a long time, there was a list of many symptoms and if someone had a certain number of them, they were assumed to have Lupus. Now, I believe there is more advanced testing. Is there a self-test or a list of symptoms we can check off to determine if we have ITP? I have Celiac Disease, IBS, in the past, I have had MRSA, and colitis (very severe, with terrible bleeding and I was hospitalized) and another bowel-based illness that can be fatal that landed me in the hospital
I strictly follow a… read more

For a long time, there was a list of many symptoms and if someone had a certain number of them, they were assumed to have Lupus. Now, I believe there is more advanced testing. Is there a self-test or a list of symptoms we can check off to determine if we have ITP? I have Celiac Disease, IBS, in the past, I have had MRSA, and colitis (very severe, with terrible bleeding and I was hospitalized) and another bowel-based illness that can be fatal that landed me in the hospital.
I strictly follow a gluten-free diet, however, I am allergic to so many other foods that I am very limited in what I can eat (it's ridiculous). I do eat meat, but very little, and often a small amount of baked chicken.
I am sick all the time, so I wouldn't be able to do complicated recipes. My BF does all the cooking.
I guess I am curious if I have ITP and if there might be a simple way to deal with it.

Thank you for your anticipated response,
Giselle

August 14, 2023
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Can ITP Be Acute If It Last For Longer Then 6 Months

Jody asked a question 💭
August 9, 2023
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