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Has Anyone Tried Meditation?

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How To Get Platelets Levels Down.

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56 questions

More Things I Can Eat To Higher My Platelets And Fruits I Can Eat.

Barbara6 asked a question 💭

What can I eat and drink to increase my platelets.

What can I eat and drink to increase my platelets.

ITP Diet: 3 Foods To Eat and 3 To Avoid Read Article...
Naima

Papaya extract is excellent at boosting platelet counts and has done so for me twice. A little pricey but absolutely worth it.

October 11, 2023
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Continue With Methotrexate And Biologics

Lizzy asked a question 💭

I have been using the above meds and have been rushed to hospital twice within 8 months with sepsis and double pneumonia. I genuinely think if I had left it a couple of days I wouldn’t be here! I came of the. Biologics because I was going to try a different one. Then stopped the methotrexate because I was on antibiotics and steroids. I have been off both for well over a month. I am now debating not going back on both the biologics and methotrexate, as I am now very scared I will not be so… read more

I have been using the above meds and have been rushed to hospital twice within 8 months with sepsis and double pneumonia. I genuinely think if I had left it a couple of days I wouldn’t be here! I came of the. Biologics because I was going to try a different one. Then stopped the methotrexate because I was on antibiotics and steroids. I have been off both for well over a month. I am now debating not going back on both the biologics and methotrexate, as I am now very scared I will not be so lucky next time I am ill. I would love to know other peoples thoughts and experiences.

Can Rheumatoid Arthritis Cause ITP? Read Article...
Angie2

Methotrexate and Biologics have been a lifesaver for me. Please talk to your rheumatologist before making a decision

September 23, 2023
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I Have Pain Daily. Do You?

Janice4 asked a question 💭

I have pain everyday from rhumtoid and fibromyalgia.

I have pain everyday from rhumtoid and fibromyalgia.

Can Rheumatoid Arthritis Cause ITP? Read Article...
Rhonda

Yes

May 8, 2024
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I Have Had Lupus For A Very Long Time. How Would I Know If I Have ITP?

Giselle asked a question 💭

For a long time, there was a list of many symptoms and if someone had a certain number of them, they were assumed to have Lupus. Now, I believe there is more advanced testing. Is there a self-test or a list of symptoms we can check off to determine if we have ITP? I have Celiac Disease, IBS, in the past, I have had MRSA, and colitis (very severe, with terrible bleeding and I was hospitalized) and another bowel-based illness that can be fatal that landed me in the hospital
I strictly follow a… read more

For a long time, there was a list of many symptoms and if someone had a certain number of them, they were assumed to have Lupus. Now, I believe there is more advanced testing. Is there a self-test or a list of symptoms we can check off to determine if we have ITP? I have Celiac Disease, IBS, in the past, I have had MRSA, and colitis (very severe, with terrible bleeding and I was hospitalized) and another bowel-based illness that can be fatal that landed me in the hospital.
I strictly follow a gluten-free diet, however, I am allergic to so many other foods that I am very limited in what I can eat (it's ridiculous). I do eat meat, but very little, and often a small amount of baked chicken.
I am sick all the time, so I wouldn't be able to do complicated recipes. My BF does all the cooking.
I guess I am curious if I have ITP and if there might be a simple way to deal with it.

Thank you for your anticipated response,
Giselle

A myITPcenter Subscriber

ITP can't be self-diagnosed - it requires blood tests to confirm. Key symptoms to watch for include:
- Easy or excessive bruising
- Small red/purple spots on skin (petechiae)
- Prolonged bleeding from minor cuts
- Unexplained nosebleeds
- Heavy menstrual periods
- Blood in urine or stool

Since you have Lupus, you should know that ITP can occur alongside it. Given your complex medical history, please see a hematologist for proper testing, which includes:
- Complete blood count
- Blood smear
- Bone marrow exam (sometimes)

Don't try to diagnose this yourself - proper medical evaluation is essential.

April 24
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Can ITP Be Acute If It Last For Longer Then 6 Months

Jody asked a question 💭
A myITPcenter Subscriber

No, ITP that lasts longer than 6 months is classified as chronic ITP, not acute. Acute ITP typically resolves within 6 months, particularly in children. When symptoms persist beyond 6 months, it's considered chronic ITP, which is more common in adults and may require ongoing management.

April 24
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I Was Diagnosed With ITP In 2014 But Haven't Had Any Symptoms Since. Do I Still Have ITP?

Marta asked a question 💭
What Do ITP Bruises Look Like? Read Article...
A myITPcenter Subscriber

I can tell you that even with no symptoms, you should still consider yourself as having ITP and continue regular platelet monitoring with your doctor. ITP can be unpredictable - symptoms may return during stress, illness, or without any trigger. Your long symptom-free period is excellent news, but keep up with check-ups to stay safe!

April 24
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Would Taking Vitamin K 100 Mcg Once A Day Help Raise Platelets?

Marjorie asked a question 💭
Complications of Untreated ITP: 5 Signs To Look For and 6 Ways To Manage It Read Article...
A myITPcenter Subscriber

taking Vitamin K supplements (100 mcg daily) has not been proven to increase platelet counts in ITP patients. ITP is an autoimmune condition where the immune system attacks platelets - this process isn't affected by Vitamin K. For managing ITP, it's best to work with your hematologist on proven treatments.

April 24
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If You Have All The Symtons Of.ITP, What Type Of Dr. Should You See.to Get It Treated

Carolyn3 asked a question 💭
Can Lupus Cause ITP? Read Article...
Anna2

Hematogist

January 3, 2024
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How Do Your ITP-related Bruises Vary In Appearance And Feel On Different Days?

myITPcenter asked a question 💭
What Do ITP Bruises Look Like? Read Article...
A myITPcenter Subscriber

ITP bruises typically follow this pattern:

Day 1-2: Dark purple/red, tender to touch
Days 3-5: Blue/violet, less painful
Days 5-10: Green/yellow edges, minimal discomfort
Days 10-14: Yellow/brown, fading
They may be larger than typical bruises and appear without injury. If you notice unusual bruising patterns or excessive pain, contact your healthcare provider. Remember, everyone's experience can be different!

April 24
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How Do You Manage Both Lupus And ITP? Share Your Experience.

myITPcenter asked a question 💭
Can Lupus Cause ITP? Read Article...
Anna

My whole red cells were nearly wiped out and bone marrow weren't making any more. I thought I had a chest infection because I was breathless but I was heading for a major heart attack. I had 3 transfusions to replace blood cells and kick start my bone marrow. Now my doctor just puts out the fires than try and treat my Lupus. Last year I had a stroke but stay 2 mins from hospital so was treated nearly immediately. Lost some feeling and weakness still down left side and short term memory is shot to hell. I've made it clear to my consultant I would rather be on immune suppressants than run this lottery on my health.

December 28, 2023
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