Amanda3

I have experienced chronic pain which can effect mobility. I'm currently on dihydrocodeine. My GP says to convince my Consultant that I must come off Doptelet

I have experienced chronic pain which can effect mobility. I'm currently on dihydrocodeine. My GP says to convince my Consultant that I must come off Doptelet

Raquel

I get the excruciating headaches as well from the IVIg treatments. They’re horrible. My last hospitalization neurology came to see me and gave me a steroid and something else concoction that actually… read more

I get the excruciating headaches as well from the IVIg treatments. They’re horrible. My last hospitalization neurology came to see me and gave me a steroid and something else concoction that actually worked. I will try to find out exactly what it was and share as this was a game changer for me. I’ve also been prescribed Ubrelvy which is a migraine medication. That helps to relieve the headache better than anything they’ve given me once you already have it. Before that, the only thing that gave me a few hours of relief was morphine. But they don’t like giving that.

A myITPcenter Subscriber

With ITP, you should avoid:

Foods with added sugars
Foods with trans fats (like deep-fried and fast foods)
Foods/drinks that affect blood clotting like
Garlic
Ginger
Ginseng
Turmeric
Grapeseed oil
A… read more

With ITP, you should avoid:

Foods with added sugars
Foods with trans fats (like deep-fried and fast foods)
Foods/drinks that affect blood clotting like:
Garlic
Ginger
Ginseng
Turmeric
Grapeseed oil
Alcohol
Tonic water (contains quinine)
Remember to check with your doctor about specific restrictions, especially if you're on ITP medications, as some have unique dietary requirements.

A myITPcenter Subscriber

A bone marrow biopsy is typically only necessary in ITP to rule out other conditions or if you're not responding to standard treatments. The procedure involves local anesthesia and feels like strong… read more

A bone marrow biopsy is typically only necessary in ITP to rule out other conditions or if you're not responding to standard treatments. The procedure involves local anesthesia and feels like strong pressure and brief pain as the sample is taken from your hip bone. Most people find it manageable though uncomfortable. It's a quick procedure (15-20 minutes) and any pain afterward usually responds well to over-the-counter pain medicine.

Remember: Only your doctor can determine if you need this test based on your specific situation.

Naima

Papaya extract is excellent at boosting platelet counts and has done so for me twice. A little pricey but absolutely worth it.

Papaya extract is excellent at boosting platelet counts and has done so for me twice. A little pricey but absolutely worth it.

Angie2

Methotrexate and Biologics have been a lifesaver for me. Please talk to your rheumatologist before making a decision

Methotrexate and Biologics have been a lifesaver for me. Please talk to your rheumatologist before making a decision

Rhonda

Yes

Yes

A myITPcenter Subscriber

ITP can't be self-diagnosed - it requires blood tests to confirm. Key symptoms to watch for include
- Easy or excessive bruising
- Small red/purple spots on skin (petechiae)
- Prolonged bleeding from… read more

ITP can't be self-diagnosed - it requires blood tests to confirm. Key symptoms to watch for include:
- Easy or excessive bruising
- Small red/purple spots on skin (petechiae)
- Prolonged bleeding from minor cuts
- Unexplained nosebleeds
- Heavy menstrual periods
- Blood in urine or stool

Since you have Lupus, you should know that ITP can occur alongside it. Given your complex medical history, please see a hematologist for proper testing, which includes:
- Complete blood count
- Blood smear
- Bone marrow exam (sometimes)

Don't try to diagnose this yourself - proper medical evaluation is essential.

A myITPcenter Subscriber

No, ITP that lasts longer than 6 months is classified as chronic ITP, not acute. Acute ITP typically resolves within 6 months, particularly in children. When symptoms persist beyond 6 months, it's… read more

No, ITP that lasts longer than 6 months is classified as chronic ITP, not acute. Acute ITP typically resolves within 6 months, particularly in children. When symptoms persist beyond 6 months, it's considered chronic ITP, which is more common in adults and may require ongoing management.