Anna2

Hematogist

Hematogist

Anna

My whole red cells were nearly wiped out and bone marrow weren't making any more. I thought I had a chest infection because I was breathless but I was heading for a major heart attack. I had 3… read more

My whole red cells were nearly wiped out and bone marrow weren't making any more. I thought I had a chest infection because I was breathless but I was heading for a major heart attack. I had 3 transfusions to replace blood cells and kick start my bone marrow. Now my doctor just puts out the fires than try and treat my Lupus. Last year I had a stroke but stay 2 mins from hospital so was treated nearly immediately. Lost some feeling and weakness still down left side and short term memory is shot to hell. I've made it clear to my consultant I would rather be on immune suppressants than run this lottery on my health.

Anna2

Im almost 67 I have bruises everywhere I was diagnosed at 7 I tried everything they had they go up but then. Bottom out with in a day or 2 all you can do is keep them checked or do like I do I have… read more

Im almost 67 I have bruises everywhere I was diagnosed at 7 I tried everything they had they go up but then. Bottom out with in a day or 2 all you can do is keep them checked or do like I do I have them checked everything 4 to 6 months I just had carpal tunnel surgery did fine it's up to you I just got tired of being a ginny pig

Terri

What has worked short term- total knee replacement surgery! It took months to get my count up high enough for the surgery; but after the surgery, my platelets had a party. They went up into the 300s… read more

What has worked short term- total knee replacement surgery! It took months to get my count up high enough for the surgery; but after the surgery, my platelets had a party. They went up into the 300s and stayed there a few weeks. Now they are slowly headed back down despite being on 75 mg of eltrombopag. But it was a weird result from surgery that no one can explain.

Patricia5

I make a leafy spinach egg omelet seasoned with onion, garlic powder and black pepper, with sliced avocado and sometime graded parmesan cheese or mozzarella cheese for breakfast.

I make a leafy spinach egg omelet seasoned with onion, garlic powder and black pepper, with sliced avocado and sometime graded parmesan cheese or mozzarella cheese for breakfast.

Dawn

Kale soup

Kale soup

Raquel

I do have a supportive and loving family. But I feel most do not truly understand the extent of this disease and how difficult it is to manage. I’m 32 and it’s like my life has been completely flipped… read more

I do have a supportive and loving family. But I feel most do not truly understand the extent of this disease and how difficult it is to manage. I’m 32 and it’s like my life has been completely flipped upside down. Went from training mma 5-6 days a week to needing to be careful not to bump into a door as it can become dangerous when your count is super low. It’s just a lot and it sucks feeling like no one around you truly understands.