A myITPcenter Subscriber

I can tell you that even with no symptoms, you should still consider yourself as having ITP and continue regular platelet monitoring with your doctor. ITP can be unpredictable - symptoms may return… read more

I can tell you that even with no symptoms, you should still consider yourself as having ITP and continue regular platelet monitoring with your doctor. ITP can be unpredictable - symptoms may return during stress, illness, or without any trigger. Your long symptom-free period is excellent news, but keep up with check-ups to stay safe!

A myITPcenter Subscriber

taking Vitamin K supplements (100 mcg daily) has not been proven to increase platelet counts in ITP patients. ITP is an autoimmune condition where the immune system attacks platelets - this process… read more

taking Vitamin K supplements (100 mcg daily) has not been proven to increase platelet counts in ITP patients. ITP is an autoimmune condition where the immune system attacks platelets - this process isn't affected by Vitamin K. For managing ITP, it's best to work with your hematologist on proven treatments.

Anna2

Hematogist

Hematogist

A myITPcenter Subscriber

ITP bruises typically follow this pattern:

Day 1-2: Dark purple/red, tender to touch
Days 3-5: Blue/violet, less painful
Days 5-10: Green/yellow edges, minimal discomfort
Days 10-14: Yellow/brown… read more

ITP bruises typically follow this pattern:

Day 1-2: Dark purple/red, tender to touch
Days 3-5: Blue/violet, less painful
Days 5-10: Green/yellow edges, minimal discomfort
Days 10-14: Yellow/brown, fading
They may be larger than typical bruises and appear without injury. If you notice unusual bruising patterns or excessive pain, contact your healthcare provider. Remember, everyone's experience can be different!

Anna

My whole red cells were nearly wiped out and bone marrow weren't making any more. I thought I had a chest infection because I was breathless but I was heading for a major heart attack. I had 3… read more

My whole red cells were nearly wiped out and bone marrow weren't making any more. I thought I had a chest infection because I was breathless but I was heading for a major heart attack. I had 3 transfusions to replace blood cells and kick start my bone marrow. Now my doctor just puts out the fires than try and treat my Lupus. Last year I had a stroke but stay 2 mins from hospital so was treated nearly immediately. Lost some feeling and weakness still down left side and short term memory is shot to hell. I've made it clear to my consultant I would rather be on immune suppressants than run this lottery on my health.

A myITPcenter Subscriber

Hi anna i have itp trying with no medication after 2 years have huge bruises come up but perservering .

Hi anna i have itp trying with no medication after 2 years have huge bruises come up but perservering .

Anna2

Everything

Everything

Patricia5

I make a leafy spinach egg omelet seasoned with onion, garlic powder and black pepper, with sliced avocado and sometime graded parmesan cheese or mozzarella cheese for breakfast.

I make a leafy spinach egg omelet seasoned with onion, garlic powder and black pepper, with sliced avocado and sometime graded parmesan cheese or mozzarella cheese for breakfast.

Dawn

Kale soup

Kale soup

Raquel

I do have a supportive and loving family. But I feel most do not truly understand the extent of this disease and how difficult it is to manage. I’m 32 and it’s like my life has been completely flipped… read more

I do have a supportive and loving family. But I feel most do not truly understand the extent of this disease and how difficult it is to manage. I’m 32 and it’s like my life has been completely flipped upside down. Went from training mma 5-6 days a week to needing to be careful not to bump into a door as it can become dangerous when your count is super low. It’s just a lot and it sucks feeling like no one around you truly understands.