After Being In Remission For 13 Yrs After Nearly Dying From ITP .... What Is The Likelihood Of Me Getting It Again ?? I Am Now 60 Yrs Old.
Wendy3
After contracting ITP at 43 yrs & having platelets at 1%, what are the chances of ITP coming back?
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I’m 61 I was diagnosed two years ago with idiopathic immune thrombocytopenia purpura. My local hematologist didn’t instill great deal of confidence in me. I nearly died. I was at 4000 platelets. I was in the hospital for weeks got several transfusions and a bunch of other drugs of a jacked up on steroid stuck in a bed for three weeks, which I can say I don’t recommend. It was really difficult sourcing information about this condition because of its rarity and learning about the combination of ITP and lupus, answered a lot of problems and questions that I had which was my platelets were at 100,000 yet I barely could get a T-shirt on or the courage to put it on because it hurts so bad in my shoulders that I have never had a problem with at any point in my life. It took Mayo Clinic in Minnesota to unravel that mystery for me. Now I’m reading everything I can about ITP that is legitimate and asking lots of questions and reading medical studies probably more than most med students. I am baffled and astonished at the lack of intellect of some of the hematologist I’ve seen. My question is is there separate treatments for each condition that will assist each other to improving movement and reduction of pain and joints and also keep the platelets at the right level?
while complete remission from ITP can occur as in your case, there's always a possibility of recurrence. However, having a 13-year remission is a very positive sign. The risk of relapse tends to be highest within the first year after achieving remission, and decreases significantly after that. While I can't give you an exact percentage, your long period of stable remission suggests a lower risk of recurrence. Continue regular check-ups with your hematologist and watch for any signs like unusual bruising or bleeding.
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