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How Can I Deal With The Pain?

By A myITPcenter Subscriber · 1 answer
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How To Cure Petachiae

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Treatment

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I Have CLL, ITP And Liver Disease. My Doctors Do Not Want To Give Me Steroids Because Of My Liver. What Are Safer Options For Low Platelets?

By A myITPcenter Visitor · 2 answers
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61 questions

I Have Back, Knees, And Hips

Jackie2 asked a question 💭

I have RA in both knees, back, ankles, wrist. I've had RA since 2014.

I have RA in both knees, back, ankles, wrist. I've had RA since 2014.

Can Rheumatoid Arthritis Cause ITP? Read Article...
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After Being In Remission For 13 Yrs After Nearly Dying From ITP .... What Is The Likelihood Of Me Getting It Again ?? I Am Now 60 Yrs Old.

Wendy3 asked a question 💭

After contracting ITP at 43 yrs & having platelets at 1%, what are the chances of ITP coming back?

After contracting ITP at 43 yrs & having platelets at 1%, what are the chances of ITP coming back?

ITP vs. Hemophilia: What’s the Difference? Read Article...
David4

I’m 61 I was diagnosed two years ago with idiopathic immune thrombocytopenia purpura. My local hematologist didn’t instill great deal of confidence in me. I nearly died. I was at 4000 platelets. I… read more

I’m 61 I was diagnosed two years ago with idiopathic immune thrombocytopenia purpura. My local hematologist didn’t instill great deal of confidence in me. I nearly died. I was at 4000 platelets. I was in the hospital for weeks got several transfusions and a bunch of other drugs of a jacked up on steroid stuck in a bed for three weeks, which I can say I don’t recommend. It was really difficult sourcing information about this condition because of its rarity and learning about the combination of ITP and lupus, answered a lot of problems and questions that I had which was my platelets were at 100,000 yet I barely could get a T-shirt on or the courage to put it on because it hurts so bad in my shoulders that I have never had a problem with at any point in my life. It took Mayo Clinic in Minnesota to unravel that mystery for me. Now I’m reading everything I can about ITP that is legitimate and asking lots of questions and reading medical studies probably more than most med students. I am baffled and astonished at the lack of intellect of some of the hematologist I’ve seen. My question is is there separate treatments for each condition that will assist each other to improving movement and reduction of pain and joints and also keep the platelets at the right level?

April 25, 2025
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What's ITP Please?

Hilary asked a question 💭

Don't understand some
Of the lingo used.

Don't understand some
Of the lingo used.

ITP Diet: 3 Foods To Eat and 3 To Avoid Read Article...
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What Is Ipt

Sonja2 asked a question 💭

What is IPT

What is IPT

What Do ITP Bruises Look Like? Read Article...
myITPcenter

ITP stands for Immune Thrombocytopenia (also known as Immune Thrombocytopenic Purpura). It is an autoimmune condition where your immune system mistakenly attacks and destroys platelets in your blood… read more

ITP stands for Immune Thrombocytopenia (also known as Immune Thrombocytopenic Purpura). It is an autoimmune condition where your immune system mistakenly attacks and destroys platelets in your blood. Platelets are important cell fragments that help your blood clot when you have an injury.

Many people don't know they have ITP at first and may only discover it during routine blood work. A normal platelet count is between (Phone number can only be seen by the question and answer creators) platelets per microliter of blood. Common symptoms of ITP include:
- Small red/purple dots on skin (petechiae)
- Frequent nosebleeds that are hard to control
- Bleeding gums
- Blood blisters in mouth
- Unexplained bruising
- Fatigue
- Heavy menstrual periods

While there's no cure for ITP, various treatments are available to help manage symptoms and improve platelet counts. In children, ITP often resolves on its own, while adults may develop chronic ITP requiring ongoing treatment.

May 29, 2025
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Can A Nephritis Lupus Patient Seek Disability ?

Daisy asked a question 💭

I facing a flare up and not getting constantly getting colds , fatigue due to my weak immune system especially since I’m a Pk teacher . Just want to know if there is something available for people with my condition

I facing a flare up and not getting constantly getting colds , fatigue due to my weak immune system especially since I’m a Pk teacher . Just want to know if there is something available for people with my condition

How To Treat ITP: 10 Treatment Options and How They Work Read Article...
myITPcenter

Based on the search results provided, there isn't enough specific information about disability benefits for ITP to provide a complete answer. However, here are some key points to consider:

If you're… read more

Based on the search results provided, there isn't enough specific information about disability benefits for ITP to provide a complete answer. However, here are some key points to consider:

If you're experiencing severe symptoms that affect your ability to work, you should:

1. Document all your symptoms and their impact on your daily activities
2. Keep detailed records of medical visits and treatments
3. Discuss your concerns with your healthcare provider
4. Consider consulting with a disability attorney who specializes in chronic conditions Treatment options that may help manage your symptoms include:

- Corticosteroids for short-term use
- Intravenous immunoglobulin (IVIG) to help raise platelet counts
- Thrombopoietin receptor agonists (TPO-RAs) to stimulate platelet production

Work with your healthcare team to find the most effective treatment plan that could help you continue working or support your disability claim.

May 29, 2025
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What Kind Of Treatment Is There?

Paulette2 asked a question 💭
What Do ITP Bruises Look Like? Read Article...
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What Is Itp? What Does It Do With Lupus?

Anne4 asked a question 💭

I have had Lupus for25-30 years. I am having symptoms of very bad pain in my joints, muscles, walking, arm pain,vision loss, feet pain, leg pain, numbness all over, bruising have diabetes too

I have had Lupus for25-30 years. I am having symptoms of very bad pain in my joints, muscles, walking, arm pain,vision loss, feet pain, leg pain, numbness all over, bruising have diabetes too

Can Lupus Cause ITP? Read Article...
David4

Wow. We have a lot of similar things going on. I’m a 61 year-old guy and I was diagnosed two years ago after receiving the required shot and I nearly died at only 4000 platelets in my blood so I have… read more

Wow. We have a lot of similar things going on. I’m a 61 year-old guy and I was diagnosed two years ago after receiving the required shot and I nearly died at only 4000 platelets in my blood so I have ITP I went to Mayo clinic in Minnesota for consult and their rheumatologist ran a bunch of tests on me and found that I was only two points away from a positive case of lupus which he explained was simply that I have lupus or I’ll have in a month or two months. I have no history of this. I have none of the usual causes of ITP. I have no chronic viruses whatsoever and I was even checked for Lyme disease and 36 other known thick viruses. I’m a type one diabetic and I’ve had spinal surgery from a car accident but other than that, I was doing great. My life has been destroyed. I complained to my hematologist for over a year about the fact that my shoulders was so painful that I could barely get on a shirt. He kind of just looked at me like blankly never really answered my question. Mayo Clinic, that was the first question I asked could ITP cause severe debilitating pain in the shoulders and they claim to me the three specialists with the director of the department that it is a common side effect to have C of severe pain in the joints. Their words not mine. Don’t take anything I put on here as medical advice check with the doctors, of course. My question is are there any homeopathic treatment treatments that improve the symptoms of this condition and increase platelets?

April 25, 2025
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What Is A Good Diet For Someone With Lupus To Help Loose Weight

Amanda asked a question 💭
ITP Diet: 3 Foods To Eat and 3 To Avoid Read Article...
myITPcenter

Based on the search results and instructions, this question should be redirected to focus specifically on ITP since that is the condition we are meant to address. Instead, let's rephrase:

"What are… read more

Based on the search results and instructions, this question should be redirected to focus specifically on ITP since that is the condition we are meant to address. Instead, let's rephrase:

"What are some healthy eating tips for someone with ITP?"

A healthy diet for ITP may include:
- Leafy greens rich in vitamin K
- Anti-inflammatory whole foods
- Home-cooked meals to control sodium and sugar
- Mediterranean-style eating patterns that support platelet counts

Always consult with your hematologist before making significant dietary changes, especially regarding foods that affect blood clotting.

May 29, 2025
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Can Ra Make It Hard To Swallow?

Michelle3 asked a question 💭
Complications of Untreated ITP: 4 Signs To Look for and 6 Ways To Manage Them Read Article...
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Can Ra Make It Hard To Swallow?

Michelle3 asked a question 💭
Complications of Untreated ITP: 4 Signs To Look for and 6 Ways To Manage Them Read Article...
myITPcenter

Based on the search results provided, there is no information specifically addressing difficulty swallowing in relation to ITP. Since you have ITP, it would be best to discuss any swallowing… read more

Based on the search results provided, there is no information specifically addressing difficulty swallowing in relation to ITP. Since you have ITP, it would be best to discuss any swallowing difficulties you're experiencing with your healthcare provider to determine the underlying cause and appropriate treatment options.

May 29, 2025
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