A myITPcenter Subscriber

Weight loss and decreased appetite can be symptoms associated with ITP or its treatments. This could be due to
- Medications for ITP
- Stress related to managing a chronic condition
- Other… read more

Weight loss and decreased appetite can be symptoms associated with ITP or its treatments. This could be due to:
- Medications for ITP
- Stress related to managing a chronic condition
- Other underlying factors

Please contact your healthcare provider about this weight loss - they can properly evaluate your specific situation and adjust your treatment if needed. Unexplained weight loss should always be discussed with your doctor.

David4

I’m 61 I was diagnosed two years ago with idiopathic immune thrombocytopenia purpura. My local hematologist didn’t instill great deal of confidence in me. I nearly died. I was at 4000 platelets. I… read more

I’m 61 I was diagnosed two years ago with idiopathic immune thrombocytopenia purpura. My local hematologist didn’t instill great deal of confidence in me. I nearly died. I was at 4000 platelets. I was in the hospital for weeks got several transfusions and a bunch of other drugs of a jacked up on steroid stuck in a bed for three weeks, which I can say I don’t recommend. It was really difficult sourcing information about this condition because of its rarity and learning about the combination of ITP and lupus, answered a lot of problems and questions that I had which was my platelets were at 100,000 yet I barely could get a T-shirt on or the courage to put it on because it hurts so bad in my shoulders that I have never had a problem with at any point in my life. It took Mayo Clinic in Minnesota to unravel that mystery for me. Now I’m reading everything I can about ITP that is legitimate and asking lots of questions and reading medical studies probably more than most med students. I am baffled and astonished at the lack of intellect of some of the hematologist I’ve seen. My question is is there separate treatments for each condition that will assist each other to improving movement and reduction of pain and joints and also keep the platelets at the right level?

A myITPcenter Subscriber

ITP (Immune Thrombocytopenia) is a blood disorder where your immune system mistakenly attacks and destroys platelets, which are blood cells needed for clotting. This leads to low platelet counts… read more

ITP (Immune Thrombocytopenia) is a blood disorder where your immune system mistakenly attacks and destroys platelets, which are blood cells needed for clotting. This leads to low platelet counts, making it harder for your blood to clot when needed. ITP can be short-term (acute) or long-term (chronic), and treatment options are available for managing symptoms.

A myITPcenter Subscriber

Corticosteroids (like prednisone) to reduce immune system activity
Immunoglobulin therapy (IVIG) for quick platelet increase
TPO receptor agonists to boost platelet production
In some cases… read more

Corticosteroids (like prednisone) to reduce immune system activity
Immunoglobulin therapy (IVIG) for quick platelet increase
TPO receptor agonists to boost platelet production
In some cases, splenectomy (spleen removal)
Rituximab, which targets specific immune cells
Treatment choice depends on severity, platelet count, and individual factors. Always work with your hematologist to find the best option for you.

Never start or stop treatments without consulting your doctor first.

David4

Wow. We have a lot of similar things going on. I’m a 61 year-old guy and I was diagnosed two years ago after receiving the required shot and I nearly died at only 4000 platelets in my blood so I have… read more

Wow. We have a lot of similar things going on. I’m a 61 year-old guy and I was diagnosed two years ago after receiving the required shot and I nearly died at only 4000 platelets in my blood so I have ITP I went to Mayo clinic in Minnesota for consult and their rheumatologist ran a bunch of tests on me and found that I was only two points away from a positive case of lupus which he explained was simply that I have lupus or I’ll have in a month or two months. I have no history of this. I have none of the usual causes of ITP. I have no chronic viruses whatsoever and I was even checked for Lyme disease and 36 other known thick viruses. I’m a type one diabetic and I’ve had spinal surgery from a car accident but other than that, I was doing great. My life has been destroyed. I complained to my hematologist for over a year about the fact that my shoulders was so painful that I could barely get on a shirt. He kind of just looked at me like blankly never really answered my question. Mayo Clinic, that was the first question I asked could ITP cause severe debilitating pain in the shoulders and they claim to me the three specialists with the director of the department that it is a common side effect to have C of severe pain in the joints. Their words not mine. Don’t take anything I put on here as medical advice check with the doctors, of course. My question is are there any homeopathic treatment treatments that improve the symptoms of this condition and increase platelets?

A myITPcenter Subscriber

Yes, Rituximab can cause difficulty swallowing in some people, particularly during or shortly after the infusion. This is usually part of an infusion reaction that can include throat irritation… read more

Yes, Rituximab can cause difficulty swallowing in some people, particularly during or shortly after the infusion. This is usually part of an infusion reaction that can include throat irritation, tightness, or swelling. If you experience trouble swallowing, tell your healthcare team immediately as they may need to slow or stop the infusion and provide treatment. This side effect usually improves after the infusion is complete.