Severe Fatigue

David4 asked a question 💭

I have complained to my hematologist for over a year and he never mentioned that this is a very common side effect of my chronic ITP. My primary care Dr. prescribed an amphetamine 2 times a day. Prior to this prescription I was so exhausted. I was spending 3 to 4 days in bed per week. This treatment has been revolutionary for me. My question is, is it common for hematologists to miss this very common symptom of ITP? Are there any other symptoms that I should be aware of? Has anyone else used this kind of therapy for fatigue? Are there any downsides?

July 7, 2024
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A myITPcenter Subscriber

Is fatigue common with ITP? Yes - studies show 50-90% of ITP patients experience significant fatigue. Your hematologist should have discussed this symptom, as it's one of the top 3 most reported symptoms alongside petechiae and bruising.

Are stimulants used for ITP fatigue? While not a standard treatment, some doctors do prescribe them when fatigue severely impacts quality of life, as in your case. The dramatic improvement you've experienced is encouraging.

Other key ITP symptoms to watch for:
- Easy bruising
- Tiny red spots on skin (petechiae)
- Bleeding from gums/nose
- Heavy menstrual periods
- Longer bleeding from cuts

The main downside to stimulants is potential side effects like insomnia, anxiety, and appetite changes. Work closely with your doctors to monitor benefits vs risks.

April 24
A myITPcenter Subscriber

Is fatigue common with ITP? Yes - studies show 50-90% of ITP patients experience significant fatigue. Your hematologist should have discussed this symptom, as it's one of the top 3 most reported symptoms alongside petechiae and bruising.

Are stimulants used for ITP fatigue? While not a standard treatment, some doctors do prescribe them when fatigue severely impacts quality of life, as in your case. The dramatic improvement you've experienced is encouraging.

Other key ITP symptoms to watch for:
- Easy bruising
- Tiny red spots on skin (petechiae)
- Bleeding from gums/nose
- Heavy menstrual periods
- Longer bleeding from cuts

The main downside to stimulants is potential side effects like insomnia, anxiety, and appetite changes. Work closely with your doctors to monitor benefits vs risks.

April 24
David4

Thank you I am aware that I cannot take any NSAIDs whatsoever. I did look up an N said that has the least amount of gastrointestinal problems like bleeding and irritation was Celebrex. I’m not on that payroll. It’s just something I came across. Does anyone else experience very noticeable shoulder or hip pain coexistent with their diagnosis and not before?

April 25
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