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73 questions

I Have Had Lupus For A Very Long Time. How Would I Know If I Have ITP?

Giselle asked a question 💭

For a long time, there was a list of many symptoms and if someone had a certain number of them, they were assumed to have Lupus. Now, I believe there is more advanced testing. Is there a self-test or a list of symptoms we can check off to determine if we have ITP? I have Celiac Disease, IBS, in the past, I have had MRSA, and colitis (very severe, with terrible bleeding and I was hospitalized) and another bowel-based illness that can be fatal that landed me in the hospital
I strictly follow a… read more

For a long time, there was a list of many symptoms and if someone had a certain number of them, they were assumed to have Lupus. Now, I believe there is more advanced testing. Is there a self-test or a list of symptoms we can check off to determine if we have ITP? I have Celiac Disease, IBS, in the past, I have had MRSA, and colitis (very severe, with terrible bleeding and I was hospitalized) and another bowel-based illness that can be fatal that landed me in the hospital.
I strictly follow a gluten-free diet, however, I am allergic to so many other foods that I am very limited in what I can eat (it's ridiculous). I do eat meat, but very little, and often a small amount of baked chicken.
I am sick all the time, so I wouldn't be able to do complicated recipes. My BF does all the cooking.
I guess I am curious if I have ITP and if there might be a simple way to deal with it.

Thank you for your anticipated response,
Giselle

August 14, 2023
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Can ITP Be Acute If It Last For Longer Then 6 Months

Jody asked a question 💭
August 9, 2023
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I Was Diagnosed With ITP In 2014 But Haven't Had Any Symptoms Since. Do I Still Have ITP?

Marta asked a question 💭
August 5, 2023
What Do ITP Bruises Look Like? Read Article...
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Would Taking Vitamin K 100 Mcg Once A Day Help Raise Platelets?

Marjorie asked a question 💭
August 5, 2023
Complications of Untreated ITP: 4 Signs To Look for and 6 Ways To Manage Them Read Article...
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If You Have All The Symtons Of.ITP, What Type Of Dr. Should You See.to Get It Treated

Carolyn3 asked a question 💭
August 2, 2023
Can Lupus Cause ITP? Read Article...
Anna2

Hematogist

Hematogist

January 3, 2024
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How Do Your ITP-related Bruises Vary In Appearance And Feel On Different Days?

myITPcenter asked a question 💭
August 1, 2023
What Do ITP Bruises Look Like? Read Article...
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How Do You Manage Both Lupus And ITP? Share Your Experience.

myITPcenter asked a question 💭
July 28, 2023
Can Lupus Cause ITP? Read Article...
Anna

My whole red cells were nearly wiped out and bone marrow weren't making any more. I thought I had a chest infection because I was breathless but I was heading for a major heart attack. I had 3… read more

My whole red cells were nearly wiped out and bone marrow weren't making any more. I thought I had a chest infection because I was breathless but I was heading for a major heart attack. I had 3 transfusions to replace blood cells and kick start my bone marrow. Now my doctor just puts out the fires than try and treat my Lupus. Last year I had a stroke but stay 2 mins from hospital so was treated nearly immediately. Lost some feeling and weakness still down left side and short term memory is shot to hell. I've made it clear to my consultant I would rather be on immune suppressants than run this lottery on my health.

December 28, 2023
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Have You Experienced And Managed Complications From Untreated ITP? Share Your Insights

myITPcenter asked a question 💭
July 28, 2023
Complications of Untreated ITP: 4 Signs To Look for and 6 Ways To Manage Them Read Article...
A myITPcenter Subscriber

The best result for my 15 years ipt diagnosis after rituxan is Doptelet 20 mg. Only 1 tablet every 10 days and platelets count remains between 180 to 223. Doptelet works different to others. Your… read more

The best result for my 15 years ipt diagnosis after rituxan is Doptelet 20 mg. Only 1 tablet every 10 days and platelets count remains between 180 to 223. Doptelet works different to others. Your oncology Dr have to make the folow up with cbc every week until see your response to it

March 23
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What Treatments Have You Tried For ITP? Which Worked Best? Share Your Experiences Below.

myITPcenter asked a question 💭
July 28, 2023
How To Treat ITP: 10 Treatment Options and How They Work Read Article...
A myITPcenter Subscriber

Didn't work IV's, Rituxan 4 doses work for 4 years then after othrr doses start decreasing to 3 year then 2 and that time get CMV bad times. They start with Promacta 25mg it work for 1 year then liver… read more

Didn't work IV's, Rituxan 4 doses work for 4 years then after othrr doses start decreasing to 3 year then 2 and that time get CMV bad times. They start with Promacta 25mg it work for 1 year then liver enzymes raise doble than normal. Change was made to Doptelet 20mg no liver damage and working great. After 6 months 180,000 to 223,000 platelets count. And dose when down to 1 tablet every 10 days. Nice. Not on every one works the same maybe you need every day. Your Dr would tell you.

March 23
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How Do You Incorporate Leafy Greens Into Your ITP Diet?

myITPcenter asked a question 💭
ITP Diet: 3 Foods To Eat and 3 To Avoid Read Article...
Patricia5

I make a leafy spinach egg omelet seasoned with onion, garlic powder and black pepper, with sliced avocado and sometime graded parmesan cheese or mozzarella cheese for breakfast.

I make a leafy spinach egg omelet seasoned with onion, garlic powder and black pepper, with sliced avocado and sometime graded parmesan cheese or mozzarella cheese for breakfast.

October 11, 2023
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