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My Son Age 8 Year With Chronic Itp Non Responder All Medication Platelets Count4

By A myITPcenter Visitor · 1 answer
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How To Deal With The Pain?

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What Is ITP?

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61 questions

How Can I Deal With The Pain?

A myITPcenter Subscriber asked a question 💭
Can Rheumatoid Arthritis Cause ITP? Read Article...
myITPcenter

There are several first-line treatment options for managing ITP:

• Corticosteroids like prednisone
• Intravenous immunoglobulin (IVIG)
• Rituximab to block immune cells from destroying platelets
•… read more

There are several first-line treatment options for managing ITP:

• Corticosteroids like prednisone
• Intravenous immunoglobulin (IVIG)
• Rituximab to block immune cells from destroying platelets
• Thrombopoietin receptor agonists to boost platelet production
• Splenectomy in more severe cases
• Immunosuppressant medications

The right treatment depends on your specific situation and severity of symptoms. Over 80% of newly diagnosed patients see improvement with IVIG, while 60-80% respond well to corticosteroids initially. To effectively manage your condition:

• Work closely with your doctor to monitor symptoms and adjust treatment as needed
• Attend regular checkups for blood work and platelet count monitoring
• Take medications exactly as prescribed
• Report any new bleeding or bruising symptoms promptly
• Discuss vaccination needs with your healthcare provider
• Ask about which over-the-counter pain medications are safe to use, as some like NSAIDs can thin blood
• Avoid contact sports and high-risk activities that could cause injury

May 29, 2025
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Why Am I Always Tired?

A myITPcenter Subscriber asked a question 💭
myITPcenter

What causes fatigue in people with ITP?

Fatigue is extremely common in ITP, affecting up to 90% of people with the condition. While the exact cause isn't fully understood, there are several potential… read more

What causes fatigue in people with ITP?

Fatigue is extremely common in ITP, affecting up to 90% of people with the condition. While the exact cause isn't fully understood, there are several potential factors:

1. Low platelet counts - Many people report worse fatigue when their platelet levels drop
2. Inflammation in the body
3. Side effects from treatments like corticosteroids (prednisone, dexamethasone) How does fatigue manifest?

Fatigue in ITP is more than just being tired - it's an excessive tiredness that doesn't go away with rest. In children with ITP, fatigue may show up as irritability or grouchiness rather than just tiredness.

If fatigue is significantly impacting your quality of life, it's important to discuss this with your healthcare provider. They can evaluate your symptoms and potentially adjust your treatment plan to help manage the fatigue.

May 29, 2025
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How To Deal With The Pain?

A myITPcenter Subscriber asked a question 💭
Can Rheumatoid Arthritis Cause ITP? Read Article...
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What Helps With The Pain

A myITPcenter Subscriber asked a question 💭
Can Rheumatoid Arthritis Cause ITP? Read Article...
myITPcenter

For pain management with ITP, acetaminophen (Tylenol) is generally considered a safer option compared to other over-the-counter pain relievers. It doesn't increase bleeding risk like aspirin or NSAIDs… read more

For pain management with ITP, acetaminophen (Tylenol) is generally considered a safer option compared to other over-the-counter pain relievers. It doesn't increase bleeding risk like aspirin or NSAIDs do.

However, always consult with your doctor before starting any new medication, even over-the-counter ones. Beyond medication, some helpful coping strategies include:

• Following your prescribed treatment plan to maintain healthy platelet counts
• Using protective gear during daily activities if needed
• Avoiding high-risk activities that could cause injury
• Maintaining regular check-ups with your healthcare team
• Adopting a healthy diet to support overall immune health

May 29, 2025
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What Is ITP?

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I Was Diagnosed With ITP Two Years Ago Just After Receiving The Moderna COVID-19 Gene Therapy.

David4 asked a question 💭

I am curious if anyone else has had the same reaction to the “vaccine “. If so, what treatment or medications were used to resolve your ITP or at least control it?

I am curious if anyone else has had the same reaction to the “vaccine “. If so, what treatment or medications were used to resolve your ITP or at least control it?

ITP vs. Hemophilia: What’s the Difference? Read Article...
David4

I contracted ITP immune thrombocytopenia perpera. This condition was caused by the COVID-19 vaccine and I nearly died because it caused inflammation in my spleen, and the dysfunction were removing… read more

I contracted ITP immune thrombocytopenia perpera. This condition was caused by the COVID-19 vaccine and I nearly died because it caused inflammation in my spleen, and the dysfunction were removing clotting platelets from my blood. Hemophilia affects the red blood cells. My condition is the platelets that rushed to a cut and stop the bleeding whether internally or externally. My numbers have been to 4000 when the average is 300,000. I went into a seizure and had to be put into a coma just to be transported to the hospital. I nearly died and the therapies for this rare blood condition are very few and present severe side effects. The worst of the condition besides death is fatigue that is so tremendous that you wish you were dead. Imagine being exhausted for hours and sitting in a recliner just from the effort of making a Keurig coffee. It’s that bad and I hope that anyone reading this did not encounter that condition from the jab. I believed all the lies. I never thought that people would be so reckless and careless with the lives and the health of others but money makes it all OK. Medicine in this country has become a business not a calling. They don’t care about you. They just want money. And some doctors are really good about pretending that they care But the minute they walk out of the examining room you’re out of their mind. It’s sick. It’s wrong and doctors are becoming the lowest of the low in society because greed and not health is their objective 99.9% of the time. It causes me a lot of rage And then when I go to the doctors and they tell me more lies it’s difficult to maintain control. But I’ve become a person that just simply gets up and walks out of the examining room without one word never to return. I pray for everyone that’s suffering from the scam.

January 1
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ITP Caused By MMR Vaccine

A myITPcenter Subscriber asked a question 💭

My daughter was diagnosed with ITP on March 31 caused by the MMR vaccine. This is all so new to us. I am looking for recipes, foods, vitamins, anything to increase her platelets naturally.

My daughter was diagnosed with ITP on March 31 caused by the MMR vaccine. This is all so new to us. I am looking for recipes, foods, vitamins, anything to increase her platelets naturally.

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High Platelets

Denise6 asked a question 💭

Very tired all the time

Very tired all the time

ITP and Fatigue: Causes and 5 Tips for Energy Read Article...
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How To Get Platelets Levels Down.

Denise6 asked a question 💭
ITP and Fatigue: Causes and 5 Tips for Energy Read Article...
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Was This Condition Diagnosed Before Or After The COVID 19 Vaccination? If So, What Manufacturer?

David4 asked a question 💭

I have been diagnosed and my experience is very similar. You are very lucky, other studies and medical journals I have read in indicated that many people spontaneously internally bleed, and often die below 10,000 platelets. Just my experience, not giving any medical advice here. Considering I had blood Surveillance every three months for type one diabetes leading directly up to the point where I receive the vaccine and after the vaccine. I dropped to 4000 platelets. FYI.

I have been diagnosed and my experience is very similar. You are very lucky, other studies and medical journals I have read in indicated that many people spontaneously internally bleed, and often die below 10,000 platelets. Just my experience, not giving any medical advice here. Considering I had blood Surveillance every three months for type one diabetes leading directly up to the point where I receive the vaccine and after the vaccine. I dropped to 4000 platelets. FYI.

Just a Rash or Something More? How One Symptom Led to an ITP Diagnosis Read Article...
David4

No actually I didn’t really notice the rash cause I’m kind of freckly and my dogs are always scratching me and so I didn’t really pay attention to it. What happened to me as I nearly died I went into… read more

No actually I didn’t really notice the rash cause I’m kind of freckly and my dogs are always scratching me and so I didn’t really pay attention to it. What happened to me as I nearly died I went into a seizure so bad that I had to be put into a coma to be putting in the ambulance and I had only 4000 platelets in my blood Something that’s not usually survivable. Because I’m a type one diabetic I had Surveillance on my blood every 3 to 6 months going back five years and I was always in the teens above 300,000 platelets that is until I received the government endorsed emergency vaccine so I could go to a restaurant boy I wish I could change my decision on that. After the second shot, my roommate who is an RN nurse practitioner heard me screaming and came running into my side of the house and found me in the seizure. His son was also there and he is an EMT an and he was able to get me through as my diaphragm began to seize, and I could not breathe. We’ve only seen aalso there and he is an EMT an and he was able to get me through as my diaphragm began to seize and I could not breathe. We’ve only seen a very small amount of what is to come. I pray for everyone. I’ve lived the dangerous life already and I kinda was looking forward to chilling out my last 10 to 15 years. Now I’m at the hospital twice a week and I can’t do any of the things that I enjoy because I’m too tired, blah blah blah but seriously there are a lot of people worse off than I so I feel blessed. Good people are trying to help. Do you have any suggestions?

April 25, 2025
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