A myITPcenter Subscriber

I would advise against deep tissue massage and gua sha (scraping massage). With low platelet counts, these aggressive massage techniques could cause excessive bruising or bleeding under the skin… read more

I would advise against deep tissue massage and gua sha (scraping massage). With low platelet counts, these aggressive massage techniques could cause excessive bruising or bleeding under the skin. Instead, consider gentle massage techniques like light Swedish massage, and always inform your massage therapist about your ITP. Check with your hematologist about what platelet count is safe for massage.

A myITPcenter Subscriber

Beyond infections, medications, and autoimmune conditions, other causes/risk factors for ITP include:


1. Vaccines (rarely) - particularly MMR vaccine in children
2. Unknown causes (idiopathic) -… read more

Beyond infections, medications, and autoimmune conditions, other causes/risk factors for ITP include:


1. Vaccines (rarely) - particularly MMR vaccine in children
2. Unknown causes (idiopathic) - Sometimes the immune system attacks platelets without a clear trigger
3. Sometimes genetics may play a role if there's a family history


Since ITP is primarily an autoimmune condition, most cases occur when the immune system mistakenly attacks and destroys platelets, even without an obvious trigger. Treatment focuses on managing symptoms rather than the underlying cause in these cases.

David4

Thank you I am aware that I cannot take any NSAIDs whatsoever. I did look up an N said that has the least amount of gastrointestinal problems like bleeding and irritation was Celebrex. I’m not on that… read more

Thank you I am aware that I cannot take any NSAIDs whatsoever. I did look up an N said that has the least amount of gastrointestinal problems like bleeding and irritation was Celebrex. I’m not on that payroll. It’s just something I came across. Does anyone else experience very noticeable shoulder or hip pain coexistent with their diagnosis and not before?

A myITPcenter Subscriber

Yes - fatigue is a common symptom in ITP patients. The condition can cause tiredness both directly and indirectly through:

- Low platelet counts affecting oxygen delivery

- The body's immune… read more

Yes - fatigue is a common symptom in ITP patients. The condition can cause tiredness both directly and indirectly through:

- Low platelet counts affecting oxygen delivery

- The body's immune response

- Side effects from ITP treatments

- The stress of managing a chronic condition

Talk to your doctor if fatigue is significantly impacting your daily life, as they can help develop management strategies specific to your situation.

A myITPcenter Subscriber

Yes, healing problems and scarring are common with ITP due to low platelet counts. Platelets are crucial for wound healing, so cuts may take longer to heal and have a higher chance of scarring. For… read more

Yes, healing problems and scarring are common with ITP due to low platelet counts. Platelets are crucial for wound healing, so cuts may take longer to heal and have a higher chance of scarring. For acne, be extra gentle with your skin - avoid harsh scrubs and picking. Talk to your hematologist about any significant cuts, and consider seeing a dermatologist for acne management that's safe for ITP patients.

Kristine

Yes I have

Yes I have

A myITPcenter Subscriber

With ITP, bruising occurs because low platelet counts mean blood doesn't clot normally. Even minor bumps can cause blood vessels to leak under the skin, creating blue or purple bruises. This is a… read more

With ITP, bruising occurs because low platelet counts mean blood doesn't clot normally. Even minor bumps can cause blood vessels to leak under the skin, creating blue or purple bruises. This is a common ITP symptom, but if you notice unusual bruising patterns or excessive bruising, contact your doctor to check your platelet levels.

A myITPcenter Subscriber

Yes, ITP can occur in RA patients, especially those on TNF inhibitors like Etanercept. Your low ESR is good, but you should:

Get regular blood count monitoring
Watch for unusual bruising/bleeding
… read more

Yes, ITP can occur in RA patients, especially those on TNF inhibitors like Etanercept. Your low ESR is good, but you should:

Get regular blood count monitoring
Watch for unusual bruising/bleeding
Tell your rheumatologist about any ITP concerns
Consider platelet count testing
Always discuss concerns with your healthcare team - they know your full medical history.

A myITPcenter Subscriber

RA and ITP can sometimes occur together as autoimmune conditions. Here's what you should know:

Both conditions involve your immune system
Some medications (like corticosteroids) can help manage both… read more

RA and ITP can sometimes occur together as autoimmune conditions. Here's what you should know:

Both conditions involve your immune system
Some medications (like corticosteroids) can help manage both conditions
Exercise is important but should be gentle during flares
Tell all your doctors about both conditions
Watch for bruising with ITP when doing physical therapy
Always work with both your rheumatologist and hematologist to coordinate care. They can help create a safe treatment plan that addresses both conditions.