David4

Thank you I am aware that I cannot take any NSAIDs whatsoever. I did look up an N said that has the least amount of gastrointestinal problems like bleeding and irritation was Celebrex. I’m not on that payroll. It’s just something I came across. Does anyone else experience very noticeable shoulder or hip pain coexistent with their diagnosis and not before?

A myITPcenter Subscriber

Yes - fatigue is a common symptom in ITP patients. The condition can cause tiredness both directly and indirectly through:

- Low platelet counts affecting oxygen delivery

- The body's immune response

- Side effects from ITP treatments

- The stress of managing a chronic condition

Talk to your doctor if fatigue is significantly impacting your daily life, as they can help develop management strategies specific to your situation.

A myITPcenter Subscriber

Yes, healing problems and scarring are common with ITP due to low platelet counts. Platelets are crucial for wound healing, so cuts may take longer to heal and have a higher chance of scarring. For acne, be extra gentle with your skin - avoid harsh scrubs and picking. Talk to your hematologist about any significant cuts, and consider seeing a dermatologist for acne management that's safe for ITP patients.

Kristine

Yes I have

A myITPcenter Subscriber

With ITP, bruising occurs because low platelet counts mean blood doesn't clot normally. Even minor bumps can cause blood vessels to leak under the skin, creating blue or purple bruises. This is a common ITP symptom, but if you notice unusual bruising patterns or excessive bruising, contact your doctor to check your platelet levels.

A myITPcenter Subscriber

Yes, ITP can occur in RA patients, especially those on TNF inhibitors like Etanercept. Your low ESR is good, but you should:

Get regular blood count monitoring
Watch for unusual bruising/bleeding
Tell your rheumatologist about any ITP concerns
Consider platelet count testing
Always discuss concerns with your healthcare team - they know your full medical history.

A myITPcenter Subscriber

RA and ITP can sometimes occur together as autoimmune conditions. Here's what you should know:

Both conditions involve your immune system
Some medications (like corticosteroids) can help manage both conditions
Exercise is important but should be gentle during flares
Tell all your doctors about both conditions
Watch for bruising with ITP when doing physical therapy
Always work with both your rheumatologist and hematologist to coordinate care. They can help create a safe treatment plan that addresses both conditions.

A myITPcenter Subscriber

Weight loss and decreased appetite can be symptoms associated with ITP or its treatments. This could be due to:
- Medications for ITP
- Stress related to managing a chronic condition
- Other underlying factors

Please contact your healthcare provider about this weight loss - they can properly evaluate your specific situation and adjust your treatment if needed. Unexplained weight loss should always be discussed with your doctor.

David4

I’m 61 I was diagnosed two years ago with idiopathic immune thrombocytopenia purpura. My local hematologist didn’t instill great deal of confidence in me. I nearly died. I was at 4000 platelets. I was in the hospital for weeks got several transfusions and a bunch of other drugs of a jacked up on steroid stuck in a bed for three weeks, which I can say I don’t recommend. It was really difficult sourcing information about this condition because of its rarity and learning about the combination of ITP and lupus, answered a lot of problems and questions that I had which was my platelets were at 100,000 yet I barely could get a T-shirt on or the courage to put it on because it hurts so bad in my shoulders that I have never had a problem with at any point in my life. It took Mayo Clinic in Minnesota to unravel that mystery for me. Now I’m reading everything I can about ITP that is legitimate and asking lots of questions and reading medical studies probably more than most med students. I am baffled and astonished at the lack of intellect of some of the hematologist I’ve seen. My question is is there separate treatments for each condition that will assist each other to improving movement and reduction of pain and joints and also keep the platelets at the right level?

A myITPcenter Subscriber

ITP (Immune Thrombocytopenia) is a blood disorder where your immune system mistakenly attacks and destroys platelets, which are blood cells needed for clotting. This leads to low platelet counts, making it harder for your blood to clot when needed. ITP can be short-term (acute) or long-term (chronic), and treatment options are available for managing symptoms.